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Unicorn Foundation

Unicorn Foundation release cancer infographics in 7 alternative languages



9 November, 2018

 

MEDIA RELEASE

FOR IMMEDIATE RELEASE

 

Unicorn Foundation release cancer infographics in 7 alternative languages

 

Tomorrow is World NET Cancer Day, a global event dedicated to raising awareness for neuroendocrine tumors (NETs). This is the rare cancer that Bollywood film star Irrfan Khan was diagnosed with earlier this year, and the same cancer that the singer, Aretha Franklin and Apple founder, Steve Jobs died of.  

 

As part of their quest to raise awareness to all Australian’s, the Unicorn Foundation in collaboration with the International Neuroendocrine Cancer Alliance (INCA), has released a series of translated infographics that draw attention to the symptoms and unmet needs of NET cancer patients.

 

The translated infographics are now available in: Chinese (Mandarin), French, Italian, German, Spanish, Japanese and Russian.

 

NET patients report difficulties in accessing information that is credible, medically vetted, in their own language, and directly applicable to the healthcare system in their country. Eighty-four percent of surveyed patients said that their needs for information about treatment options were not met at the time of diagnosis.

 

Commonly located in the pancreas, lungs, abdomen, reproductive organs and bowel, NET symptoms can include, weight loss, hot flushes, shortness of breath and diarrhoea. Sadly, NETs are frequently misdiagnosed with conditions such as: anxiety, menopause, Irritable Bowel Syndrome (IBS) or diabetes.

 

By the time patients are correctly diagnosed, life expectancy can be drastically reduced. Early detection is the key.

 

Simone Leyden, CEO of the Unicorn Foundation, says:


“60% of patients have advanced stage NET cancer by the time they are correctly diagnosed and there is currently no cure. We have more than 10,000 known cases in Australia and another 1,800 patients are expected to be diagnosed within the next year”

 

“We hope that the translated infographics will assist the various international communities within Australia and help to provide NET patients with the information they need, in a language they can understand.”


To further raise awareness, the Unicorn Foundation is also hosting the inaugural NETWalk. Leading medical experts from around the world, NET patients and their families are meeting in Melbourne, lacing up their sneakers and pounding the pavement on World NET Cancer Day to help raise awareness for neuroendocrine cancer (NETS).

 

This year also overlaps with the Asia Pacific Neuroendocrine Tumour Society (APNETS) symposium, hosted in Melbourne. An annual, global program that brings together medical experts from around the world that specialise in the field of neuroendocrine tumours (NETS).

 

To view all translated infographics: https://bit.ly/2PJF5TQ 

 

For more information including information on the Unicorn Foundation, NET statistics and patient videos view our Media Kit: https://bit.ly/2JNLXtU

 

 

** ENDS**

 

 

Background Info:

 

Infographic translations were originally created by the International Neuroendocrine Cancer Alliance (INCA) for distribution by their affiliates, including the Unicorn Foundation.

 

The Unicorn Foundation is the only Australian charity at the forefront of efforts to raise awareness and understanding of NETs, both within the medical profession and the wider public. https://bit.ly/2BptA92
 

World NET Cancer Day is a global event held annually on the 10th of November to raise awareness of neuroendocrine cancers around the world. https://bit.ly/2Mvu8EL

 

 

FOR ALL MEDIA ENQUIRIES, IMAGES AND INTERVIEWS CONTACT

 

Megan Mitchell: megan@hucksterpr.com.au 0412 581 858
Simone Leyden: simone.leyden@unicornfoundation.org.au 0419 871 975

 

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